Being a caregiver to a child with microcephaly, or any birth defect can be very expensive, heartbreaking and worrisome, but it can also be an incredible experience, according to the parents. I was reading about the Zika virus and then reading about microcephaly (mic-row-ceph-ah-lee), where the head and brain are underdeveloped. Learning about the dangers of the Zika virus and then learning about microcephaly wasn’t an easy read, until I came to the comments from the parents. I was expecting to read an article that was going to leave me in tears, but instead I was amazed by the incredible strength these parents have and left me feeling very proud of them, even though I don’t know them.
The article states that Microcephaly is a rare birth defect and in the U.S., for every 10,000 babies born only two to twelve babies will have the condition. The article continues with the cause of microcephaly is a mystery, but it has been linked to random or inherited genetics, malnutrition and certain infections during pregnancy. http://Faceing Zika fears: Raising kids with microcephaly
I am my Mother’s full time caregiver. She is bedridden and needs 24/7 care. I know what it takes and what it means to be a caregiver and how much of your life is not your own and being dedicated to your loved one is what we strive to do every day. But caring for a child with special needs, I just don’t know if I would have the strength to do it. I am very lucky and blessed that my children are what is deemed “normal”. We don’t realize how lucky we are until you read an article such as this one about microcephaly and then you begin to realize what the word “strength” really means. Yes, strength from the parents, but also an incredible strength from the children with microcephaly. One Mom said, “We just want people to see that she’s not scary.”
There are many aspects to caregiving and there are many different types of caregivers. These Mom’s are Aces in my book.
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